Αυτό το ιστολόγιο είναι διγλωσσο απο τον Ιούλιο του 2011. Οι αναρτήσεις γράφονται ως επι το πλείστον στα ελληνικά και κατόπιν μεταφράζονται στα αγγλικα, το συντομότερο δυνατό.
This blog is bilingual since July 2011. The posts are written mostly in Greek and then translated into English as soon as possible.
All you have to do is scroll down after the Greek post.
Well, 2010 is leaving at last! Hopefully 2011 will bring on some healing. I'm so sick and tired of being sick and tired. Things HAVE to change...I have so much to do...
ok, I'll take another nap!
never EVER give up!
don't think...just hope it will be better.
if it's not ok, it's not the end! remember this.
Happy, Healthy, Wealthy, Smiling, Loving 2011 to All! Thanks for your love and support.
I've been trying to write this post for days...I still don't know what to say. I try to be positive but sometimes is really hard. Especially when the disease is so complicated, vague and relatively unknown. Ηowever, I'll tell you the facts, with a slight "yay" (as I promised in my previous post)...
Last Thursday, I went to IASO Clinic in the Nuclear Medicine Department (I didn't even know that it existed). There, me and another guy were planned to have our SPECT scans. The procedure was easy for me since I could stay still for about half an hour; the other poor guy had to repeat the scan 3 times because his brain major injury was making him move all the time :( Just before the procedure, we were injected with a radioisotope fluid, which is necessary for the execution of the SPECT scan.
This is how the results look like...It actually shows the blood flow in different areas of the brain (the image is cropped and is just a small part of the results) :
The whole thing in the Clinic finished around 11am (I was there with both my parents since 7:50am!)... But we had to wait, because the meeting with the Doctor to discuss the results was scheduled at 13:00 at the Doctor's office, close to the Clinic. So we sat at Iaso's cafeteria to "kill some time". Horrible experience for my Lyme self...The noise "hurt" my brain and I was dizzy, the smells choked me and all this reminded me why I prefer to stay at home and never go out anymore!
Finally we met with the Doc. Remember, this is the Turkish Doctor who told me we would salsa...! He said that he was happy with the results, because the "damage" presented in my scan is theoretically reversible. The picture is also "compatible" with my condition so that's good news too. However, he used the word "theoretically" because he himself wants to see some improvement first, since every case responds differently to treatment... (that's why I don't shout Yays and Hoorays, YET). He gave me a new treatment protocol with many supplements and Tavanic IV antibiotic (Levaquin is the USA name) instead of Rocephin, which I took for a total of 2 months.
Yesterday I also got an answer from my American Lyme adviser -my Lyme Angel actually- who saw my SPECT results (which I scanned and sent to him) and was even more happy... As he wrote: "the "damage" IS reversible, your other symptoms also ARE reversible, they are all being caused by inflammation and since your treating it and killing it, your feeling worse, that's ALL right in line with the treatment...". I SO hope he is right. I've been feeling so bad lately, exhausted, stiff and off-balance that is scary. And depressing. I am a positive and optimistic person, but this "journey" is lasting too long and is getting tougher and tougher...
Anyway, I am off antibiotics from today and for a week (or maybe two), taking only my supplements and drinking A LOT of water, in order to detox and rest my body so it is ready for the Tavanic IV phase... Let's see... It is what it is!!
Remember the SPECT scan I was supposed to have last summer? It seems I'm finally having it on this coming Thursday at 8:00 am! I am scared. I am stressed. I am scared as hell actually, not of the procedure of course, but of the result... My Doctor said that this examination shows us the size of the damage and whether it is reversible or not!! Ok, we'll talk about it Thursday night... You will either read a post full of Yay, Yiupiiiii and WooHoo's, or a post without words, only a music video or something...! You'll understand.
Anyway, I don't know if it's my stress, the moon, the weather, a bad hair-day, my hormones, or all-of-the above; my mood today is soooo BAD, I even cried when my nurse was here!! So embarrassing! Poor guy he didn't know what to do, "coming uninvited" to this super pity-party of mine... Poor thing, he was trying to make me laugh! I was so "moved" by him trying and I cried more instead of laughing... (Damn you Lyme bacteria for making me so emotional!) Well, after he left, I thought that I have to get him a nice Christmas gift for everything he does for me...right? (Ideas PLEASE)!!
And on the top of all this, Christmas season is here...Again! Grrrrrrrrr.... :(
I'll be back on Thursday... until then, think of me...
(and HUG me again plz!!)
What's worth the price is always worth the fight...
I uploaded my video on YouTube at last! For those of you who haven't watched it on my previous blog entry, watch it now please... See how Lyme bacteria can affect the body, if misdiagnosed and left untreated. Educate yourselves and others. If I had a correct diagnosis and treatment 3 years ago, things might have been very different for me and for the people who love me and take care of me every single day! I hope it is not too late and that I will slowly recover. If I don't, at least I hope that my story helps someone to be saved. So please, spread the word...
Today I had a very best friend here for coffee. We had fun talking, eating gluten free yummies and drinking Starbuck's super coffee drinks :)) She had last saw me about 2 months ago and she said that today I sound much better (yay)! She also took a video of my nurse Yiannis, changing and cleaning my Picc line, as he does every other day. Because of this video, I thought it's about time. Time for you to see me. No more Mrs. Shy Lady, after-all this is another step to my "spread awareness" project...
