~~~ Page updated: April 2013 ~~~
This page will be updated often so it will always presents my current condition with a glance.
Age: 40
Diagnosis: Late Stage Chronic Lyme/ALS manifestation
Date of diagnosis: Sept. 25, 2010
Western blot results:
IGENEX IGM RESULT POSITIVE
CDC/NYS RESULT POSITIVE
23-25 kDa. ++
41 kDa. +++
58 kDa. +
31 kDa. IND
39 kDa. IND
IGENEX IGG RESULT
41 kDa. +
39 kDa. IND
HME Panel (monocytic) POSITIVE (tested for co-infections on June 2011)
Symptoms:
(Progress, if any, in parenthesis)
Weakness in hands & fingers
Wrist drop
Tremors or unexplained shaking in hands
Muscle cramps (improved)
Stiff neck & shoulders
Twitching of muscles mainly hands, arms & face (dramatically improved)
Swallowing and speech difficulty
Shortness of breath, can't get full/satisfying breath (improved)
Cannot cough (little improved)
Difficulty in balance and walking
Stiffness in the legs & spasticity
Knee-pain (much improved)
Extreme sensitivity to smells (improved)
Sensitivity to sound and light (much improved)
Over-emotional reactions (improved)
Mood swings (improved)
Irritability / "Lyme rage"
Skin rashes that come and go all over the body (much improved)
Skin hypersensitivity (little improved)
Disturbed sleep-too much or too little / Insomnia (dramatically improved)
Exaggerated symptoms or worse hangover from alcohol
Swollen glands
Flushes and unexplained sweats/Heat Sensitivity (dramatically improved)
Reduced circulation in extremities - cold hands or feet (improved)
Restless leg syndrome
Increased eye floaters/Itchy eyes (dramatically improved)
Increased motion sickness
TMJ discomfort
Extreme fatigue
1st SPECT scan: Done December 2010 (see here)
More SPECT scans done in India (August 2011-November 2012)
Treatment:
Treatment for Lyme started: Oct. 16, 2010
Currently on:
- Bicillin L-A Injections 1.2 Million Units, Twice a Week
- Vizylac
- Glycolate
- Ladose
- Coconut oil
- Zeolite
Physical therapy daily.
Speech therapy and breathing exercises.
