Sept. 2007-April 2010
On September 2007 (35 years old), I noticed a slight weakness on my left hand while brushing my hair. At the same time and for many years before that incident, I was suffering from mild depression, I was on a very bad nutrition, a lot of stress, unexplained skin problems, endometriosis, severe colitis (gastrointestinal problems), candida all the time, and other infections…Frequent heart palpitations and flushes, as well as major anxiety, made me think that I was just having panic attacks, was losing my mind and needed psychotherapy asap! From 2002-2005 I lived in a house with mold problems...My psychological symptoms were much worse. My "leaky" gut was a major problem. Often headaches and exhaustion too.
Since I thought that my hand weakness was "only psychological", it was after 5 months, on February 2008, that I went to a neurologist, had MRIs, he couldn’t make a diagnosis, wanted me to take cortisone to test if I would get better (I refused), so he said to wait, as it could "go away by its own"!...
On May 2008 I felt worse and beside the weakness I also noticed some atrophy on my left hand. Went to Hospital to make all examinations possible, because the doctor was afraid of ALS. Blood tests, spinal tap, etc, etc. Stayed 4 days in the hospital because of the spinal tap side-effects. Diagnosis?...: "According to the clinical signs and the electrophysiological findings the patient presents kinetic neuron SYNDROME. The comprehensive para-clinical examination (imagining and haematological) eliminated, in the present phase, the possibility of underlying pathological damage that leads to the above descriptive neurological picture". They wanted to re-evaluate my condition after 3 months. Did not suggest any medications or anything at all... I had some ozone shots which improved my left hand's movement for a while. At that time, a slight problem with my right hand also begun.
What to do?...So many doctors saw me during my stay in the hospital and could not help me...! A friend suggested to go to a very good Iridologist (http://en.wikipedia.org/wiki/Iridology), who saw a problem with pituitary gland (maybe a virus), and gave me several supplements, vitamins and homeopathic drugs. Aside from weakness and atrophy of the upper extremities, which were the first major symptoms, for the last 10-11 months now I have: difficulty in balance and walking, stiffness in the legs, sometimes trembling when my feet are in a certain position (when sitting or on my toes), twitching of muscles mainly hands and face, mood swings, irritability, depression, no sex drive, extreme sensitivity to smells, sensitivity to sound and light, stiff neck and joints, tremor, muscle cramps, over-emotional reactions (cry easily), mood swings, hair loss all year round, skin rashes that come and go all over the body, disturbed sleep-too much or too little-, exaggerated symptoms or worse hangover from alcohol, swollen glands, flushes and unexplained sweats, rib soreness, fatigue, swallowing and speech difficulty (slurred speech), knee-pain, etc. ... (All symptoms of Lyme disease)
Beginning of October 2008, I visited Gemelli Hospital in Rome, Italy, where I went through several tests and examined by a top neurologist-professor, specializing and researching ALS. Everything was negative for ALS, but still no diagnosis… I continued with the Iridologist’s supplements, but my health was still slowly deteriorating.
On May 2009 I did again a MRI of the brain and neck, which, according to the neurologist who was attending me, was without any change from the first (i.e., without pathological findings). At the same time, I did a dynamic X-ray of the neck – it was normal. The neurologist could not make a diagnosis, he said that it looked like a "pyramidical syndrome"...!
But the ALS-fear was stuck in my head, so on May 22, 2009, I went back to Rome and visited the medical center “Biophysics-Research” who are ALS Specialists http://www.biophysics-research.com/ , where I was thoroughly examined. They found oxidation and fungi in the pituitary gland, and totally excluded the possibility of ALS. I took the medication they prescribed which was mainly composed of homeopathic as well as conventional medicine. I also took as antidepressants, Samyr (Same) and Neurapas. Although I had a slight improvement with my leg-shaking, my speech was getting worse.
On July 9, 2009, I visited Dr. C. (former ENT Surgeon, now Holistic Medicine Doctor). He ran several examinations through ART and another very advanced technique with a metal stick and a machine listing all body parts...He concluded that, there is no possibility of ALS, MS etc, but he saw possibility of a dysfunction of the neurotransmitters, caused by infection, toxicity, oxidation, gastrointestinal chronic malfunction (leaky gut), vitamins' deficiency, heavy metals, specific hormones problem. He described my condition as autoimmune, and prescribed several homeopathy drugs as well as vitamins, food supplements and a strict special diet (gluten/sugar/lactose free, and more) in order to kill the bacteria etc.
On August 2009 however, I went to the USA, where I was examined at Mass General Hospital, in Boston. There, the doctor gave me the "death sentence"; she said I have motor neuron disease, most probably ALS, only by looking at me!.... She just recommended Riluzol pills (Rilutek) and «hope». When I asked her to test me for Lyme, she said: "Noooo......why?? Do you have Lyme in Greece???".....I insisted to be tested (after-all I have lived in the USA, and in the UK for some time)...She laughed and refused.
When I came back to Greece, I contacted a medical center which co-operates with a German medical company, in order to have the MELISA test for Lyme. I also had the Western-blot in a Greek lab. They were negative (as usual with Lymies). But there, I was informed on stem-cell therapy, with (adult) skin stem-cells. I decided to proceed, and now (April 2010) I am just after the 3rd infusion (3 infusions over a 6 month period).
Moreover, on November 2009 I went to Germany to be examined by Dr. K. (http://www.klinghardtacademy.com/BioData/Dr-Dietrich-Klinghardt.html ). He said I was surely positive for Borrelia, Bartonella and Mycoplasma (Lyme disease and co-infections). He also told me to be tested for HPU, which I did and came out positive too. (http://www.hputest.nl/ewhat.htm ). I follow his protocol for about 2-3 months now (I had a great difficulty to find everything he prescribed)...:
- Lyme cocktail in blender 3 TIMES DAILY
1 tsp phospholipid exchange
1 glass grapefruit juice
3 drops grapefruit seed extract
4 dropperfull quintessense
2 caps artemisinin 100mg each
1 scoop 100mg microsilica
“ “ OSR
“ “ OSR
- Chlorella 10 tbl 3 TIMES PER DAY
- (30 min before cocktail)
- The Core 3 caps with lunch
- Evening Primrose Oil 3 caps with dinner
- Vitamin D1000 10 caps divided 3 TIMES PER DAY
- Interfase enzyme 4 caps (away from food)
- Olive leaf 2 dropperful 3 TIMES PER DAY
- SSKI (Tri-Quench) 3 drops per day over 20 minutes with inhaler
- Vitamin K2 1 dropperful 2 TIMES PER DAY
- Lithium 75mg per day (away from cocktail)
- Glutathione iv 3000mg twice a week
- Lipoic Acid iv once a week
- Hydroxy B12 shots twice a week
I have also done about 20 (1-hour) sessions of HBOT. I felt kinda stronger but didn't last. I will probably do some more.
There is a long way ahead, but I will find a way through this!!...I know there is still something missing, the search continues...
Diagnosis is here...http://mylymeupdates.blogspot.com/2010/10/igenex-results-and-new-protocol.html