I've been trying to write this post for days...I still don't know what to say. I try to be positive but sometimes is really hard. Especially when the disease is so complicated, vague and relatively unknown. Ηowever, I'll tell you the facts, with a slight "yay" (as I promised in my previous post)...
Last Thursday, I went to IASO Clinic in the Nuclear Medicine Department (I didn't even know that it existed). There, me and another guy were planned to have our SPECT scans. The procedure was easy for me since I could stay still for about half an hour; the other poor guy had to repeat the scan 3 times because his brain major injury was making him move all the time :( Just before the procedure, we were injected with a radioisotope fluid, which is necessary for the execution of the SPECT scan.
This is how the results look like...It actually shows the blood flow in different areas of the brain (the image is cropped and is just a small part of the results) :
The whole thing in the Clinic finished around 11am (I was there with both my parents since 7:50am!)... But we had to wait, because the meeting with the Doctor to discuss the results was scheduled at 13:00 at the Doctor's office, close to the Clinic. So we sat at Iaso's cafeteria to "kill some time". Horrible experience for my Lyme self...The noise "hurt" my brain and I was dizzy, the smells choked me and all this reminded me why I prefer to stay at home and never go out anymore!
Finally we met with the Doc. Remember, this is the Turkish Doctor who told me we would salsa...! He said that he was happy with the results, because the "damage" presented in my scan is theoretically reversible. The picture is also "compatible" with my condition so that's good news too. However, he used the word "theoretically" because he himself wants to see some improvement first, since every case responds differently to treatment... (that's why I don't shout Yays and Hoorays, YET). He gave me a new treatment protocol with many supplements and Tavanic IV antibiotic (Levaquin is the USA name) instead of Rocephin, which I took for a total of 2 months.
Yesterday I also got an answer from my American Lyme adviser -my Lyme Angel actually- who saw my SPECT results (which I scanned and sent to him) and was even more happy... As he wrote: "the "damage" IS reversible, your other symptoms also ARE reversible, they are all being caused by inflammation and since your treating it and killing it, your feeling worse, that's ALL right in line with the treatment...". I SO hope he is right. I've been feeling so bad lately, exhausted, stiff and off-balance that is scary. And depressing. I am a positive and optimistic person, but this "journey" is lasting too long and is getting tougher and tougher...
Anyway, I am off antibiotics from today and for a week (or maybe two), taking only my supplements and drinking A LOT of water, in order to detox and rest my body so it is ready for the Tavanic IV phase... Let's see... It is what it is!!