IGeneX' Results and New Protocol

It's been exactly 2 months since my last update. I admit it people, I've been lazy! But also tired, hot, some days very depressed, anxious... It was a rough summer for me, but now it's over, sweet breezy Fall is finally here, so my new blog-layout and my fabulous self are back :)

First of all, the "good" news.. I'm officially diagnosed with Lyme Disease. Actually, Late Stage Neuro-Lyme. Officially meaning positive for Lyme by IGeneX lab and by the CDC (Centers for Disease Control) strict criteria. After 3 years of searching and struggling for a diagnosis, it's on paper now. 3 years!!...that I couldn't get any answers... My health was deteriorating and doctors didn't know why...I knew. I even ordered a Western-blot (test for Borrelia antibodies) myself in a lab here in Greece. Came back "negative"...although 3 very specific bands appeared positive... But I didn't know so much then. I should have known right? Bad, bad me! Only one doctor, Dr.K, told me almost a year ago that I had Borrelia, by using his ART method (http://www.neuraltherapy.com/art.htm). Other doctors did not believe that..I'm not a doctor but I believed it. It sounded much much better than the (one and only) ALS-death-diagnosis I got from MassGeneral last summer.... And that is why I say "good" news. It's a little ironic being happy testing positive for such a complicated and horrible disease as Lyme. To be honest, when I got my test results back I cried. For hours. I was devastated thinking of the battle I had ahead of me...Long term, difficult battle! Being so physically weak and tired already! But at the same time I was relieved by thinking I AM strong and I will win this. At least I'll try as hard as I can! It is a disease that can be battled-so it IS good news after all... Compared to...

Well now, I have to try to forget everything that has been (unsuccesfully) done so far concerning treatment, and start fresh again! Following my recent treatment with oral antibiotics, it's now time for the big stuff: IV (intravenous) antibiotics. After the Lyme-positive results, that's the best way to go. I had a meeting with my doctor and the Turkish doctor (remember?..the "Salsa" guy), who both also agreed with my American lyme-advisor, that our next step is IV Rocephin. So I will have a chest-port catheter placed on my chest (bleeach...) in order to infuse Rocephin daily. I hope it doesn't hurt. I've been told that the catheter is much better than the PiCC line and after a while, you forget about it. We'll see, I'll let you know... However, I think it will be easier than the PiCC line I had, because being able to use both arms is a very big thing for me now, considering that I have to use both hands just to hold a glass of water.

Hopefully in the next 10 days I will go under this procedure and will start infusions. I will also have the SPECT scan (at last!). Doc feels very optimistic and hopes for a significant improvement within the next 2 months following this new and aggressive protocol: 

ROCEPHIN (ceftriaxone sodium) IV 2gr daily inf.in 30 minutes 

Supplements:

1. Bowel SUPPORT FORMULA RNA drops
2. Nerve Coat FORMULA drops
3. Cellfood drops
4. GET-B12 (B12 Spray)
5. Neurological Health Formula Tablets 
6. Mitoforce Mitochondrial Support Tablets
7. Carlson fishoil 1600mg liquid 
8. Vita Spectrum capsules
9. Reduced L- Glutathione 75mg
10. Ther-Biotic Complete powder 
11. Naltrexone 3mg/ml in EMU oil cream 

Of course, I continue my physical therapy along with light weight-lifting. This is going great. Fortunately I haven't lost any significant muscle tone, except from my hands. I build up rather easy, as long as I keep on my normal weight. So I try to eat plenty of protein as well as some "fattening" foods because in the last 3 months I lost a lot of weight that I have to gain back. I am still on my anti-neuroinflamatory diet, but once or twice a week I "cheat" with some Moussaka, or Pizza :) Thanks to a good  friend, I got a recipe for an amazing gluten/sugar-free Chocolate Cake...I enjoy it very often and with absolutely no regrets!! 

C u again soon.

This is a PiCC line...very uncomfortable-cannot bend arm!

I had it last March for a week, for stem-cell infusion preparation..

And this is the g/s/free Choco Cake! Yummyyy :)