In my last post/update I was on detox from Levaquin (Tavanic) antibiotic. Well, the detox lasted 3 weeks and then I was put back on Rocephin (Ceftriaxone) and NOT Levaquin which proved to be too strong for me (for now). So, since February 14th, I am having daily IVs (intravenous) infusions of 2gr Rocephin. Every single day, for half hour. Probably for 3 months. We will see. At least my picc-line is still in great condition. Crazy party-life huh? Anyway...
I also take Flagyl (Μetronidazole) orally, twice a week. The rest of my protocol stays the same.
Furthermore, I have a new physical-therapist. She is amazing! We've only done 3 sessions until now, but she has so many new ideas and exercises, I'm getting much more optimistic on this aspect. A lot of stretching, range of motion exercises, strength, balance, walk, and deep controlled breathing with a special exercising tool, is my routine... By the way, I don't have breathing problems, but I have weak abdomen, diaphragm, voice etc, so these tools can also help.
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| Breath Exerciser |
It's harder than it looks! You are supposed to breath-in (suck in air) so much, as to push those balls up.
Well, I promise my next update will not be in 2 months again :)
Hopefully with some good news!
I'm very concerned and sad about my walking...
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| I live for this day! |
Many kisses Georgia!
ReplyDeleteThis 3balls thing looks tough. At the beginning I thought you have to blow air... which would make it (I think) more easy, but then I read the "suck air" and, hmmm.... yeah, not easy.
Don't leave us without news and ofc, don't let us wait for 2 months!!! I hope for good news, even the slightest in a very shorter period of time. (the "no news is good news" is not true! I really wonder who thought about this quote! :P)
In the last picture you should add also a small strawberry dog ;)
a place in my heart.
ReplyDeleteyou there.
just that.
:)
I follow your blog with great interest but I am not convinced that someone may have lyme and not some other imitative disease.
ReplyDeleteMy question is how are you so sure that you have lyme disease and not something else?
Have you ever thought that it may be the wrong treatment for you ?
Usually, many people do not want to face the reality and invent situations like the Stockholm syndrome.If you had the lyme disease then you would have seen results from October so far in such a treatment regimen taken daily.Just wondering how it is possible to believe in something that the chances are minimal when you also do not see any visible results of this treatment.
If you have not seen results within a month from the moment you received the treatment then you sould not be so sure it's Lyme disease and you should ask other doctors about whether you continue this specific treatment or not.
It can affect your body and may adversely affect some other disease that you may have.
Who told you that you should continue to take antibiotics and other various forms of medicines for a long reriod of time when you haven't already seen positive results during the last six months?
Ιt is better to have lyme disease instead of something else but you must be 100% sure and not to play with possibilities and especially take medications that may have no effect on your body.
Dear Anonymous (!!)
ReplyDeleteThank you for your comment, but are you a doctor? Also, have you read my whole blog?...I am sure I have Lyme because after visiting many doctors who had no answers, the only 'positive' test I had was the one for Lyme bacteria. Have you read my "current condition" page? I am treated by 3 doctors now (here and abroad) who believe in this diagnosis. I guess they all (and myself) have the Stockholm syndrome??...
And finally, what is your suggestion?
Thanks.
Georgia,
ReplyDeleteI do not propose anything because I'm not a doctor.
Just my brother had a similar problem afflicted 4.5 years, had no effect and finally he 'd ALS disease.The drugs he took over so many years it wasn't the best for the ALS disease, so when he stopped because he was sure he had lyme his whole md picture worsened the situation because he had finally ALS.Thats the point !
Sorry but I have no time to read what you write to your very well done blog but I found this page by searching for relative topics in google on behalf of my brother whose tragic situation worsened since last January.
It is better to have lyme disease instead of another such as ALS and wish not to have end-stage lyme because it is extremely difficult to treat.
I just wish the best for you and never rest on the confidence that it is lyme.Confidence in these cases is much more dangerous and worse for your health than dealing with the difficulties of another illness like ALS or some others.My friendly advice is that you must be 100% confident in everything you do, not because you wanted to be something different.
Concentrate on the real problem and although the diagnosis of lyme,continue to look very carefully detailed and in depth.
What happens in Greece;
Eventually goes bankrupt or the Greek Prime Minister and your Government continues to mock you;
In Sweden, everyone knows about the dire economic situation in your country.
I visited Greece two years ago on vacation with my wife and our three children and we 're very disappointed by the situation.After our visit to Greece we went to your neighbor country Turkey in a cruise and with great sadness we have seen that Turkey is in a much better fate than the great, historic and glamorous land of Greece at all levels. .... and much cheaper than Greece.
Georgia,
I hope to overcome the health problem you have and Greece to find the path of growth, although difficult to those who ineffectively govern for 50 years your country.
P.s.
I do not disclose my personal information like my name on the internet but I'll tell you my name.
Well,my name is Staffan (with a).
It comes from the Swedish form of Greek name Stephanos, meaning "crown" in Swedish but I do not support the Swedish king and the royal family because I believe in people power.
Have a nice day ,there.
Thank you very much Staffan for reading and commenting my blog. Have a nice day too.
ReplyDeleteHi Hun,
ReplyDeleteI came across your blog while reading up on Lyme's (I was just diagnosed myself with some symptoms very similar to yours). I was reading through your posts and I'm curious about the ALS thing because I'm wondering how this has been dismissed, despite the EMG being bad? But then you said you had 2 other doctors refute ALS completely, Did they also do EMG'S to confirm that statement? I would just hate to see you pumping yourself with these drugs only to make yourself sicker and sicker..
How are you tolerating the Rocephin and how long have you been on it? And are you noticing any improvements yet, even minor ones?
Sometimes "Herxing" can be brutal; but if the "herx" is ongoing and lasting for many many months, I would keep digging for answers. Hang in there and stay strong! xx
I hate all those doctors who do not recognize the importance of traditional medicine making diagnoses without examining the facts of each patient.
ReplyDeleteIt's risky, ridiculous and very immature for both the physician and the patient....
I completely agree with the previous two commentators and all I have to say is that you should just trust the doctor who made the initial diagnosis. It is not right to hear different opinions because it might be the wrong treatment for you.
Treat the disease you depending on what it is and not what you'd like to be. It is very easy for patients like you to divert the real problem with something others less painful.
The risk of exposure to drugs that are inappropriate for addressing the problem are equally important.
Many doctors say with certainty that patients have lyme disease but without examining the data of medical examinations as they should do.
My question to you dear,is that how 're you so sure you have lyme and at the same time you're not so sure that you have ALS ?
So,stay away from homeopathy doctors, holistic approach to the problem faced with such power and soul and do not make the mistake to follow a treatment for even 5% if its not sure that is appropriate for your md case.
Dear G,.....
I totally agree with the last two previous commentators.
It appears that you are able to fight but you have to be sure about what you are fighting for.
Hello beautiful young woman. You hang in there. You are one of my first online Lyme friends. I had a tool like pictured except it was blue & for breathing out after I had my gallbladder removed. Are you on Actigall to go with the rocephin? Rocephin costed me my gallbladder! But I don't miss it.
ReplyDeleteHang in there girl, we can do this!!
xoxo -Sonya
Hello dear Sonya!! I'm so happy to see you here! I read your blog too, in fact you inspired me to start this blog :-)
ReplyDeleteI've read about your operation and I'm glad you don't miss your gallbladder! My LLMD monitors me with blood-tests every 3 weeks, so he said no need YET for Actigall. I've been on continuous Rocephin for less than three months now... How long did it take to cost you your gallbladder? Tell me so I can ask him again ;-)
We can and we WILL do this!
xoxo G.
Dear 2 last Anonymous commentators,
ReplyDeleteThanks for reading my blog. I appreciate your comments, but I trust my docs (who are real MDs and not homeopathy doctors as you said) without this meaning that I don't constantly ask, search, read, question everything. I'm fighting for MY LIFE here, I never said I'm sure 100% that I don't have ALS, but having strong POSITIVE test results for Lyme from the world's most reliable lab (IGeneX), makes me wanna try to treat this first with all my power and then see what's next... I've spend hundreds of hours researching (I still do) and I feel very educated on my condition. When the (only) doctor who gave me the "possible ALS" diagnosis, said that there is no cure but only "hope", what should I do? Stay home and wait to die, and "stick with this diagnosis" as you suggest? By the way, did you know that Ceftriaxone (Rocephin) is used in clinical trials for ALS cure? So no harm, right?...
I was on it for almost 2 months, long break and on it again now for almost 3 months. The protocol says continuous 6-9 months in some extreme cases, usually 3-6 months for chronic late lyme. I tolerate it very well, I have blood-tests every 3 weeks.
Anonymous #1, I hope you start feeling better soon, stay strong :)
Anonymous #2,thanks, I try to fight whatever the "label" or name of my condition is, on a holistic and serious base:)
Once again I appreciate your helpful comments. Forgive me but since this is a "health blog" and it feels strange to receive anonymous opinions in such sensitive issues, I de-activated this, so please take two minutes and register if you need to comment.
Thanks again for visiting my blog :)